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  1. Hi Sarah!

    I was surprised to see today’s title on Rage Against the Minivan, because I know ocular albinism well. My 25-year old brother has OA, and I’m a carrier of it. I don’t have children, but any sons I have will have a 50/50 chance of having it.

    My purpose in writing to you is to say that if you don’t have an OA community around you, my brother and/or mom would be more than happy to answer any questions you might have about raising your sons with OA. My brother has grown up into the most INCREDIBLE man. He had laser eye surgery a few years ago which of course didn’t completely correct his vision, but improved it. He’s able to drive and live a “normal” life, except for using large print books, computer screens, etc. He’s married and has a great career in finance.

    I know of only one other family that lives with OA, so that’s why I was so surprised to see your blog post. Again, if you’d like to contact me to talk with my family, feel free to do that! Thanks, Elizabeth

  2. Angela says:

    I found your blog from Rage Against the Minivan. My four year old daughter has OA and I cannot tell you how grateful I am to find another parent of an OA child! I smiled with recognition when I saw how your son holds his head, as my daughter does that, too. She wears bifocals and that helps a bit with depth perception, however minimally. My brother has a sever visual impairment so I have a point of reference, but my husband does not and that can make it difficult.

    I have no point to this comment, but to say thank you for sharing your story. I feel quite alone in it sometimes.

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