Child Awareness

I have recently been thinking about Will’s awareness of his eye condition, Ocular Albinism. Since he was born with it, it is his normal and he probably isn’t aware that his eyes see differently than other people. There was a discussion about child awareness in a Facebook Group for parents of OA/OCA children about when …

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Eye 2 Eye

Two weeks ago the boys had their annual eye exam with Dr. Weiss at Seattle Children’s Hospital. We go each year to see Dr. Weiss as he is one of the nation’s leading authorities on nystagmus and Ocular Albinism (OA). During our visits we make sure no other issues are cropping up and track the …