A Pacific Northwest Mom with two boys on the journey of life
As Will would say, “Jack all done patch.” Jack had a follow-up with Dr. Weiss at Seattle Children’s to determine if the patching was helping his weak eye. To recap, in November at his appointment they discovered that Jack’s left eye was weaker than his right eye. That started 6 weeks of patching everyday for …
Last week the boys had their follow-up eye appointment at Seattle Children’s with Dr. Weiss. This appointment was to assess how William’s development was going and figure out if Jackson also has Ocular Albinism. Using an OCT, Optical Coherence Tomography, machine they were able to map Jack’s retina. OCT is essentially an optical ultrasound. They …
Yesterday we had out 6 month check in with Dr. Weiss (William’s pediatric Ophthalmologist). He tested William’s visual acuity and did a complete examination on Jackson. Will’s visual acuity is doing well. He is still following the standard curve of normal eye development. His acuity measured better than 6 months ago and we have also …
This week we had our appointment with Robin Glass, Will’s feeding specialist. We haven’t seen her since early October, so I was interested to get her perspective on how Will was doing with his solids. He is very interested in food, just not really into using the spoon. He will pick up anything that I …
Will has a normal irregularly shaped head. YAH! The head CT didn’t find anything wrong. YAH! Finally a doctor with some good news for us. The doctor and radiologist felt that his dent was a normal irregularity and would probably correct itself over time. His ears are not level, but there isn’t a reason that …
Friday we had Will’s follow-up appointment with Craniofacial at Seattle Children’s. Here is the back story… Will was born with a condition called torticollis, which means twisted neck. His head tilted to the side and his face turned up as his natural/at rest position. We think he was wedged in my pelvis, causing him to …
Yesterday was the day we had been waiting for since we made the appointment a month ago. It was Will’s eye doctor appointment with Dr. Avery Weiss at Seattle Children’s. This was the day that we would confirm Will’s Ocular Albinism and try to get as much information as we could from Dr. Weiss, who …
Yesterday was William’s swallow study. This was the last of the tests GI suggested we do with him. During the swallow study he sat in a seat that looked similar to a car seat next to a fluoroscope (like the one used during the upper GI). We fed him bottles of barium and then watched …
Yesterday Will had his GI follow-up appointment with Dr. Burpee at Seattle Children’s. The test results for the pH probe, Upper GI and Endoscopy were all normal. He had 31 episodes of reflux detected by the pH probe during the 24 hour period. One of them lasted a minute, but none longer than that. His …
Yesterday morning we left our house for Seattle Children’s Hospital and returned home this afternoon after an endoscopy, pH probe, upper GI and appointment with a feeding specialist. It was a busy two days and we are all very tired. Needless to say you don’t get much sleep when you are in a hospital, but …